[PAGID] DiGeorge syndrome with severe hypocalcemia

[Charles.Kirkpatrick at UCHSC.edu]

We are caring for a 40 year old man with partial Di George syndrome.
Immunologically, he is not severely impaired.  He has a major problem
with hypocalcemia, and, in addition to all the usual treatments for
hypocalcemia, he needs intravenous calcium infusions 3  times each week
to prevent seizures and cardiac arrhymias.  He and his primary care
physician have raised a question about an allogeneic parathyroid
transplant.

I would be interested in hearing about any experience any of you have
had with a situation like this.  Any tricks that might help.  Clinical
outcomes? Were cultured tissues used? Immunosuppression protocols?
Anything.

Thanks.

 

Charles Kirkpatrick, M.D.

 

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