[PAGID] ALPS with recurrent hemolytic anemia

[sullivak at mail.med.upenn.edu]

There is some literature to support cellcept or rapamycin.  We use rapamycin.
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-----Original Message-----
From: "Church, Joseph" <JChurch at chla.usc.edu>
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Date: Wed, 28 Jul 2010 15:14:39 
To: <pagid at list.clinimmsoc.org>
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Subject: [PAGID] ALPS with recurrent hemolytic anemia

I follow a 15yo boy with documented CD95 mutation.  He has had recurrent
episodes of profound hemolytic anemia (Hgb to 4.5).  He is VERY healthy
between episodes.

 

He has an HLA-identical family member.

 

Is the recurrent hemolysis a justification to consider HSC transplant?

 

Joe Church

Childrens Hospital Los Angeles


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