[CIS-PAGID] APECED - long term prognosis

[Richard Wasserman]

Joe,
In 1998 I had a 15 yo girl with presumed APECED transplanted from a male
sib. She had absent function of thyroid, parathyroid, adrenal and ovary but
the endocrine pancreas was preserved. She has generally done well but has
not had recovery of endocrine function.
Richard

On Fri, Sep 30, 2011 at 11:24 AM, Church, Joseph <JChurch at chla.usc.edu>wrote:


>  Colleagues:****

>

> ** **

>

> I follow a teen with APECED (documented *AIRE *mutation).  Over time he

> has progressively developed additional auto-immune target organs.****

>

> ** **

>

> What is the *long term* prognoses/survival of these patients with current

> endocrinologic support?****

>

> ** **

>

> Joe Church****

>

> Children’s Hospital Los Angeles****

>

>

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-- 
Richard L. Wasserman, MD, PhD
DallasAllergyImmunology
7777 Forest Lane, Suite B-332
Dallas, Texas 75230
Office (972) 566-7788
Fax (972) 566-8837
Cell (214) 697-7211
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