[CIS-PAGID] CVID? Diagnosed Incidentally in Healthy Patient, What Do I Do?

[Dr. Carsten Speckmann]

In our experience (similiar as for cardiac MRI) it depends on the age of the patient. Good qualtiy imaging requires that the patient can lie still for the time of the procedure (+/-20min). For a young patient this can be a long time.

Carsten Speckmann

--
Sent from my phone - please excuse the brevity and possible typos

Dr. Carsten Speckmann 
Center for Chronic Immunodeficiency - CCI
and Center of Pediatrics
University of Freiburg
Germany
phone: +49 (0)761 270 43010
fax: +49 (0)761 270 45990
www.cci.uniklinik-freiburg.de

Am 07.05.2012 um 21:41 schrieb "Sullivan, Kathleen" <sullivak at mail.med.upenn.edu>:


> Yes- I don't think we have ever been able to do it without sedation.

> On May 7, 2012, at 3:32 PM, Church, Joseph wrote:

> 

>> Kate:  Do your AT kids usually need sedation for the procedure?

>> 

>> Joe Church

>> 

>> -----Original Message-----

>> From: pagid-bounces at list.clinimmsoc.org [mailto:pagid-bounces at list.clinimmsoc.org] On Behalf Of Sullivan, Kathleen

>> Sent: Monday, May 07, 2012 12:01 PM

>> To: pagid at list.clinimmsoc.org

>> Subject: Re: [CIS-PAGID] CVID? Diagnosed Incidentally in Healthy Patient, What Do I Do?

>> 

>> We use MRI for our AT patients and have been quite pleased with it.

>> 

>> 

>> On May 7, 2012, at 2:53 PM, Bleesing, Jacob wrote:

>> 

>>> a quick note on imaging and patients with immunodeficiency disorders (concerns for radiation).

>>> 

>>> having to deal with 2 sibs with Ligase IV deficiency, I learned from 

>>> our radiologists that MRI might be an alternative to HRCT scans. Got 

>>> good data from MRI, but since there was no significant bronchiectasis, 

>>> hard to make a case for MRI as a replacement

>>> 

>>> see URL:

>>> 

>>> http://www.ncbi.nlm.nih.gov/pubmed/21622550

>>> 

>>> Perhaps an opportunity for us to find out if this true or not.

>>> 

>>> JB

>>>