[CIS-PAGID] disability for adults with immune deficiency

[Riedl, Marc]

Agree with Charlotte and Richard.  Have encountered this rarely, but in each case due to the long-term effects of CVID-associated conditions (advanced chronic lung disease, longstanding inflammatory arthritis, etc.). There are certainly a subset of less-ill patients that consider themselves "disabled".  I too avoid going down the road to disability with these individuals, though some teachers/day-care providers have done dramatically better after changing positions to reduce infectious exposures.

From: <Cunningham-Rundles>, Charlotte <charlotte.cunningham-rundles at mssm.edu<mailto:charlotte.cunningham-rundles at mssm.edu>>
Reply-To: pagid listserve <pagid at list.clinimmsoc.org<mailto:pagid at list.clinimmsoc.org>>
To: pagid listserve <pagid at list.clinimmsoc.org<mailto:pagid at list.clinimmsoc.org>>
Subject: Re: [CIS-PAGID] disability for adults with immune deficiency

Yes, I have, and got it, but not for the immune defect itself...... I have had a few with terrible lungs when discovered and in  some of these, no education so they could not qualify for work aside from outside construction  or   road work, or cleaning the subway    ( one woman was offered that job.)


On 5/16/12 7:45 PM, "drrichwasserman at gmail.com" <drrichwasserman at gmail.com> wrote:

In 30 years I can only think of one patient for whom I supported disability and the major reason that I did was that disability got him coverage for his IgG therapy. He had CVID that presented as ITP and several other autoimmune disorders that interfered with his life much more than infection. There are some "chronically ill" sinusitis patients with antibody deficiency and limited objective findings other than poor vaccine response who consider themselves disabled. I have not gone down that road.
Richard Wasserman
Dallas


On Wed, May 16, 2012 at 4:24 PM, Hare, Nathaniel D <NHare at cheshire-med.com> wrote:
If I could pose a quick question, aimed at those who take care of adults with immune deficiency (and primarily in the US), how do you handle the question of putting them on disability, if it comes up? I have never put anyone on long term disability for immune deficiency – it never seems to inhibit their ability to do their job, unless they keep getting sick.  They may have to change their jobs to reduce exposure. In my mind though, it does not warrant disability in most cases.  However, the question almost always seems to come up.

Thanks!

Nathan Hare


Nathaniel D. Hare MD
Allergy & Immunology
CMC - Dartmouth Hitchcock Keene
Keene, NH  03431

ph  (603) 354-5496 <tel:%28603%29%20354-5496>
fax (603) 354-5498 <tel:%28603%29%20354-5498>



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