[CIS PIDD] [cis-pidd] FW:

[Richard Wasserman]

Obviously, XLA is quite different. I had an adult XLA patient who underwent
liver transplant, developed a brain aspergilloma and recovered and
ultimately died of chronic rejection. Overall, he had an excellent quality
of life post-transplant. I think Charlotte is right about collecting solid
organ transplants in CVID. It might be broadened to include any PID.
Richard Wasserman
Dallas


On Fri, Mar 28, 2014 at 4:16 AM, Nicholas, Sarah Kogan <sknichol at bcm.edu>wrote:


> We had a CVID patient at TCH whom we listed for liver transplant a few

> months ago.   His underlying diagnosis was a concern at the time.  In my

> review of the literature, I found 14 case reports of any solid organ

> transplant in CVID (there may be one or two more older reports I was unable

> to access online).   Of the 14, at least 6 were deceased, ranging from POD3

> to 6 years out.  Two died from overwhelming aspergillus infection, others

> from other infections, bleeding complications, and graft dysfunction.  We

> decided that CVID would not be an absolute contraindication, but that we

> would do additional prophylaxis with voriconazole and that there would

> likely need to be heightened concern for both rejection and infection.

>  Unfortunately our patient came to us quite late / ill and had to be

> deactivated due to clinical decompensation.  I also spoke to Charlotte at

> the time and we wondered if there was more experience out there.

>

> Sarah

>

> Sarah K Nicholas, MD

> Section of Immunology, Allergy, and Rheumatology

> Baylor College of Medicine and Texas Children's Hospital

> ________________________________________

> From: Riedl, Marc [mriedl at ucsd.edu]

> Sent: Thursday, March 27, 2014 3:42 PM

> To: CIS-PIDD

> Cc: nuria.matamoros at ssib.es

> Subject: Re: [cis-pidd] FW:

>

> Andy is correct (as usual).  During my 12 years at UCLA, I had a few CVID

> patients that underwent evaluation by the lung transplant team, but

> ultimately were not listed or transplanted with their CVID cited as an

> "unacceptable risk" given the required post-transplant immunosuppression.

>

> Marc

>

> Marc Riedl, MD, MS

> Associate Professor of Medicine

> Division of Rheumatology, Allergy & Immunology

> University of California, San Diego

> 9500 Gilman Dr, Mail Code 0732

> La Jolla, CA  92093

> Tel 858.822.6766  Fax 858.642.3791

>

> From: <Saxon>, Andrew Saxon <asaxon at mednet.ucla.edu<mailto:

> asaxon at mednet.ucla.edu>>

> Reply-To: CIS-PIDD <cis-pidd at lists.clinimmsoc.org<mailto:

> cis-pidd at lists.clinimmsoc.org>>

> Date: Thursday, March 27, 2014 12:52 PM

> To: CIS-PIDD <cis-pidd at lists.clinimmsoc.org<mailto:

> cis-pidd at lists.clinimmsoc.org>>

> Cc: "nuria.matamoros at ssib.es<mailto:nuria.matamoros at ssib.es>" <

> nuria.matamoros at ssib.es<mailto:nuria.matamoros at ssib.es>>

> Subject: RE: [cis-pidd] FW:

>

> UCLA does a lot of lung transplants but I never heard of one here

>

> Andy Saxon, MD

> UCLA Dept of Med.

>

> From: Cunningham-Rundles, Charlotte [mailto:

> charlotte.cunningham-rundles at mssm.edu]

> Sent: Thursday, March 27, 2014 12:34 PM

> To: CIS-PIDD

> Cc: nuria.matamoros at ssib.es<mailto:nuria.matamoros at ssib.es>

> Subject: [cis-pidd] FW:

>

> Dr Matamoros in Mallorca asked me about  lung transplant in CVID.   Does

> anyone have a case ? Did it go well, or were there problems?

> If so, what kinds?

>

> Perhaps we could collect together some data,  so we are somewhat more

> knowledgeable about this?

>

> We had three in NYC and wrote them up into a review, and I do not have any

> more information past that experience.

>

> Charlotte

>

> Charlotte Cunningham-Rundles, MD, PhD

>

> Departments of Medicine and Pediatrics

>

> The David S Gottesman Professor

>

> The Immunology Institute

>

> Mount Sinai School of Medicine

>

> 1425 Madison Avenue

>

> New York, NY 10029

>

> Phone: 212 659 9268

>

> Fax: 212 987 5593

>

> Email: Charlotte.Cunningham-Rundles at mssm.edu<mailto:

> Charlotte.Cunningham-Rundles at mssm.edu>

>

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-- 
Richard L. Wasserman, MD, PhD
DallasAllergyImmunology
7777 Forest Lane, Suite B-332
Dallas, Texas 75230
Office (972) 566-7788
Fax (972) 566-8837
Cell (214) 697-7211

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