[CIS PIDD] [cis-pidd] FW: Lung Tx and CVID

[Szabolcs, Paul]

Dear Charlotte

WE have not yet done a case but you might be aware that we have an open protocol for BOLT + followed by BMT from the same donor for those in pulmonary failure due to an underlying PID .
CVID is one of the eligible diagnoses. We have one young adult  from Long Island who very recently enrolled but not yet listed by UNOS. Happy to talk more about this if your are interested
http://clinicaltrials.gov/ct2/show/NCT01852370

Please send my regards to Jim! You may recall I was trained by him and Margaret way back 1990-1993

Best Regards, Paul

Paul Szabolcs, MD

Professor of Pediatrics and Immunology,
University of Pittsburgh School of Medicine,
Chief, Division of Blood and Marrow Transplantation and Cellular Therapies
Children’s Hospital of Pittsburgh of UPMC
http://www.chp.edu/CHP/bmt

One Children’s Hospital Drive
4401 Penn Avenue, Rangos, Room 5125
Pittsburgh, PA 15224
Phone:  412-692-6225
Fax:  412 692-7816
LR page: 412 958-6985
E-mail:  paul.szabolcs at chp.edu<mailto:paul.szabolcs at chp.edu>

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From: "Cunningham-Rundles, Charlotte" <charlotte.cunningham-rundles at mssm.edu<mailto:charlotte.cunningham-rundles at mssm.edu>>
Reply-To: CIS CIS servlist <cis-pidd at lists.clinimmsoc.org<mailto:cis-pidd at lists.clinimmsoc.org>>
Date: Thu, 27 Mar 2014 19:33:38 +0000
To: CIS CIS servlist <cis-pidd at lists.clinimmsoc.org<mailto:cis-pidd at lists.clinimmsoc.org>>
Cc: "nuria.matamoros at ssib.es<mailto:nuria.matamoros at ssib.es>" <nuria.matamoros at ssib.es<mailto:nuria.matamoros at ssib.es>>
Subject: [cis-pidd] FW:

Dr Matamoros in Mallorca asked me about  lung transplant in CVID.   Does anyone have a case ? Did it go well, or were there problems?
If so, what kinds?

Perhaps we could collect together some data,  so we are somewhat more knowledgeable about this?

We had three in NYC and wrote them up into a review, and I do not have any more information past that experience.

Charlotte

Charlotte Cunningham-Rundles, MD, PhD

Departments of Medicine and Pediatrics

The David S Gottesman Professor

The Immunology Institute

Mount Sinai School of Medicine

1425 Madison Avenue

New York, NY 10029

Phone: 212 659 9268

Fax: 212 987 5593

Email: Charlotte.Cunningham-Rundles at mssm.edu<mailto:Charlotte.Cunningham-Rundles at mssm.edu>

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