[CIS PIDD] [cis-pidd] FW:

jimmy mond jimmymond at gmail.com
Fri Mar 28 16:58:13 EDT 2014


Thanks
On Mar 28, 2014 4:54 PM, "Shah-Patel, Heena A." <HShahP at lsuhsc.edu> wrote:


> We have one experience with a 52-year-old CVID patient with a lifetime

> of sinopulmonary infections and subsequent bronchiectasis. When her FEV1

> was down to 33% (0.66L), she underwent successful bilateral lung

> transplantation in June of 2012 here in New Orleans. She is currently doing

> well, oxygen free, on IVIG, able to breathe again with correction of her

> pulmonary function (100% FEV1, 2.31L) and no evidence of rejection thus

> far.

>

> In doing research regarding this case, I did come across 2 other case

> reports of CVID with chronic lung disease and transplantation. One died

> from aspergillosis and the other had a similar outcome to ours.

>

> Heena Shah, MD

> Allergy & Immunology Fellow-In-Training

> Louisiana State University Health Sciences Center

> 200 Henry Clay Avenue #4228

> New Orleans, LA 70118

>

> ------------------------------

> *From:* Cunningham-Rundles, Charlotte [

> charlotte.cunningham-rundles at mssm.edu]

> *Sent:* Thursday, March 27, 2014 2:33 PM

> *To:* CIS-PIDD

> *Cc:* nuria.matamoros at ssib.es

> *Subject:* [cis-pidd] FW:

>

> Dr Matamoros in Mallorca asked me about lung transplant in CVID.

> Does anyone have a case ? Did it go well, or were there problems?

> If so, what kinds?

>

> Perhaps we could collect together some data, so we are somewhat more

> knowledgeable about this?

>

> We had three in NYC and wrote them up into a review, and I do not have

> any more information past that experience.

>

> Charlotte

>

> Charlotte Cunningham-Rundles, MD, PhD

>

> Departments of Medicine and Pediatrics

>

> The David S Gottesman Professor

>

> The Immunology Institute

>

> Mount Sinai School of Medicine

>

> 1425 Madison Avenue

>

> New York, NY 10029

>

> Phone: 212 659 9268

>

> Fax: 212 987 5593

>

> Email: Charlotte.Cunningham-Rundles at mssm.edu

>

> ---

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