[CIS PIDD] [cis-pidd] Chronic Norovirus Infection

Wed Oct 8 11:39:43 EDT 2014

Dear Joe & Mikko, 

In UK to my knowledge we have 1 in Sheffield; 4 in Cambridge ( Kumaratne), 2 in Cardiff ( Steve Jolles). 

Our patient is on TPN. We are currently treating ours with Ribavarin + IFN alpha.

BW
Ravi

-----Original Message-----
From: Church, Joseph [mailto:JChurch at chla.usc.edu] 
Sent: 08 October 2014 14:31
To: CIS-PIDD
Subject: RE:[cis-pidd] Chronic Norovirus Infection

Thank you, Mikko.  This seems to be a lot more common than realized by many.  JC

-----Original Message-----
From: Seppänen Mikko [mailto:Mikko.Seppanen at hus.fi] 
Sent: Tuesday, October 07, 2014 11:45 PM
To: CIS-PIDD
Subject: [cis-pidd] VS: Chronic Norovirus Infection

Dear Joe, 

we have at least late-/delayed-onset 4 CVIDs, and I know a few more CVIDs from other Finnish units. 

They represent the more severe T dysfunction spectrum, one has LOCID actually, and all of them are malnourished, quite severely affected and need for example extra supplementation of lipid-soluble vitamins, one has peroral calorie supplementation as well. All have some CVID-associated intestinal +/- hepatic manifestations as well. 

Not happy about their situation, far from it... Studying them more closely and attempting treatments...

Mikko Seppänen, Finland

________________________________________
Lähettäjä: Church, Joseph [JChurch at chla.usc.edu]
Lähetetty: 23. syyskuuta 2014 2:36
Vastaanottaja: CIS-PIDD
Aihe: [cis-pidd] Chronic Norovirus Infection

Colleagues:

I am trying to get some idea of the extent of chronic norovirus infection in patients with primary or acquired immunodeficiency.

I would very much appreciate your letting me know how many such patients you follow and their underlying immune deficiencies.

Thank you for your help.

Joe Church
Children's Hospital Los Angeles

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