[CIS PIDD] [cis-pidd] XIAP colitis BMT experience requested

[Kate Sullivan]

Thx

Kate Sullivan
Sent from my iPhone

> On Apr 8, 2015, at 3:56 PM, Verbsky, James <jverbsky at mcw.edu> wrote:
> 
> We transplanted one. Colitis is gone. Had some transplant complications but not thought to be xiap related
> 
> Sent from my iPhone
> 
> On Apr 7, 2015, at 6:06 AM, "Sullivan, Kathleen" <sullivak at mail.med.upenn.edu<mailto:sullivak at mail.med.upenn.edu>> wrote:
> 
> Good morning!
> 
> I found two published cases of XIAP deficiency who presented with colitis who were transplanted. Looks like RIC conditioning is the consensus but I wonder if folks would be willing to share their outcome experiences on this bulletin board specifically for colitis.  I have a teenage Crohn patient just found to have XIAP deficiency.
> 
> Have people seen full resolution of the colitis post transplant?
> 
> Any unusual complications to watch for?
> 
> Outcome good generally?
> 
> 
> Thanks so much for sharing.  This is a really nice (and pretty savvy) young man who just wants to know what to expect.
> 
> Kate
> Kate Sullivan, MD PhD
> Wallace Chair
> Chief of Allergy Immunology
> ARC 1216 CHOP
> 3615 Civic Center Blvd.
> Philadelphia, PA 19104
> (p) 215-590-1697
> (f) 267-426-0363
> 
> 
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