[CIS PIDD] [cis-pidd] NLH and rituximab = NHL NOT

Tue May 26 13:53:42 EDT 2015

Dear Kate,
We do have about 20 patients with NHL/GL-ILD lymphocytic  infiltrate with/without granulomas that we follow at our institution.
We have treated 6 of them with Rituximab/AZA combo and have had insurance issues with only 1 of them.
We have tried to work around the issue by using a  previous diagnosis of cytopenia ( AIHA, ITP, etc) as a secondary diagnosis ( if the patient has had it in the past).

Thanks,
Avni Joshi
Mayo Clinic

-----Original Message-----
From: Saxon, Andy M.D. [mailto:ASaxon at mednet.ucla.edu] 
Sent: Tuesday, May 26, 2015 12:29 PM
To: CIS-PIDD
Subject: RE:[cis-pidd] NLH and rituximab = NHL NOT

OOPS, Nodular Lymphoid Hyperplasia, not NHL. Just a moment too soon/late to see Kate's email

Andy Saxon
UCLA

-----Original Message-----
From: Saxon, Andy M.D.
Sent: Tuesday, May 26, 2015 10:27 AM
To: 'CIS-PIDD'
Subject: RE: NLH and rituximab = NHL

She suspect she meant NHL, non-hodgkins lymphoma.  It is remarkable they would deny Rituximab if the NHL is CD20+.

-----Original Message-----
From: Church, Joseph [mailto:JChurch at chla.usc.edu]
Sent: Tuesday, May 26, 2015 9:58 AM
To: CIS-PIDD
Subject: RE:[cis-pidd] NLH and rituximab

Sorry Kate, but what is NLH?
Joe Church

-----Original Message-----
From: Sullivan, Kathleen [mailto:SULLIVANK at email.chop.edu]
Sent: Tuesday, May 26, 2015 7:09 AM
To: CIS-PIDD
Subject: [cis-pidd] NLH and rituximab

I have a CVID patient who has been denied rituximab for NLH by her insurance company for lack of data.  It is true that there are no published studies.  I think they will accept “collective knowledge”.

If you have treated a patient with CVID and NLH with rituximab successfully, would you be so kind as to weigh in on this list serve so I can compile the information and present it to the insurance company?

If others have faced this- perhaps we could channel these data into a short report so it is out there for others to use.

Kate
Kate Sullivan, MD PhD
Wallace Chair
Chief of Allergy Immunology
ARC 1216 CHOP
3615 Civic Center Blvd.
Philadelphia, PA 19104
(p) 215-590-1697
(f) 267-426-0363

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