[CIS PIDD] [cis-pidd] AW: BMT in STAT3-HIES: Yes or better not?

[CIS-PIDD]

Dear Ellen,

at the moment I would only discuss this step in the case of early progressive lung disease threatening to result in respiratory insufficiency.

Best wishes, St.



UNIVERSITÄTSKLINIKUM FREIBURG
Sektion Pädiatrische Immunologie (CCI)
Zentrum für Kinder- und Jugendmedizin
Prof. Dr. Stephan Ehl
Medizinischer Direktor CCI
Breisacher Straße 115 · 79106 Freiburg
Telefon: +49 (0)761 270-77300
Telefax: +49 (0)761 270-77744
stephan.ehl at uniklinik-freiburg.de<mailto:stephan.ehl at uniklinik-freiburg.de>
www.uniklinik-freiburg.de<http://www.uniklinik-freiburg.de>
www.uniklinik-freiburg.de/cci<http://www.uniklinik-freiburg.de/cci>

Von: CIS-PIDD [mailto:cis-pidd at lists.clinimmsoc.org]
Gesendet: Donnerstag, 23. Februar 2017 14:53
An: CIS-PIDD
Betreff: [cis-pidd] BMT in STAT3-HIES: Yes or better not?


Dear all,

I was contacted by one of our STAT3-HIES families that they received the suggestion to receive BMT and what I think about this.

I have discussed this shortly with Hans Ochs, Alex Freeman, and Steve Holland with inconsistent out-come.

My concerns about all the involvement of STAT3 not hematopoietic system related issues was shared. On the other hand if BMT helps the hematopoietic system it might be also better for the rest.

I am looking very forward to get to know your current opinion about BMT in STAT3-HIES and what your recommend your patients/families.

Thank you a lot.

Best,

Ellen Renner



Ellen D Renner, MD, Dr. med.



Professor of Translational Immunology

Environmental medicine, Klinikum rechts der Isar
Technische Universität München
Munich, Germany

Ellen.Renner at tum.de<mailto:Ellen.Renner at tum.de>






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