[PAGID] possible SCID

[HELEN CHOREMI-PAPADOPOULOU]

May I ,please, ask to change my email address to :

       echoremi at windowslive.com

Thank you

Eleni Choremi-Papadopoulou
 

> From: j.ziegler at unsw.edu.au

> To: pagid at list.clinimmsoc.org

> Date: Tue, 24 Feb 2009 10:56:15 +1100

> Subject: Re: [PAGID] possible SCID

> 

> -

> 

> Remember that some Omenns can be very sensitive to chemotherapy. 

> 

> -----Original Message-----

> From: pagid-bounces at list.clinimmsoc.org

> [mailto:pagid-bounces at list.clinimmsoc.org] On Behalf Of Abraham, Roshini S.,

> Ph.D.

> Sent: Tuesday, 24 February 2009 2:48 AM

> To: pagid at list.clinimmsoc.org

> Cc: Aly.Mageed at devoschildrens.org

> Subject: Re: [PAGID] possible SCID

> 

> 

> 

> 

> 

> Thank you for all the suggestions and comments we have received: here is an

> update:

> 

> 

> We have been trying to taper off steroids to repeat Mitogen Stim off

> steroids. The patient developed rash again and we sent of the testing with

> CGH, TREC, CD4 recent thymic emigrants (to look for recent thymic

> activity) working on where to send spectratyping (?suggestions).

> Meanwhile, IGE level is 1430 off steroids (was only 9 on steroids!!) ,

> making it likely to be Omenn despite no enlarged nodes, or enlarged L-S.

> Eos is up in the 20+%( AEC around 800). Also, a recent BAL ( was tachypneic

> and with some chest infiltrate) is + for Rhino virus. Any further

> suggestions as far as BMT conditioning (MSD) and Rhino MGT ( which can be a

> problem during BMT)?

> 

> Thanks,

> 

> 

> Aly Mageed, MD, MBA

> Division Chief, Pediatric Blood & Marrow Transplant Program Director, Stem

> Cell Engineering Laboratory Helen DeVos Children's Hospital, Spectrum Health

> Associate Professor of Pediatrics, Michigan State University Grand Rapids,

> MI

> (616)-391-3962

> aly.mageed at spectrum-health.org

> 

> 

> Roshini S. Abraham, Ph.D., D(ABMLI)

> Mayo Clinic

> Rochester, MN

> 

> 


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