[CIS-PAGID] FW: Rx of APECED

[Church, Joseph]

Thanks, Richard.  The patient has 3 organs involves so far: pituitary, adrenals and pancreas.  My patient doesn't have a sibling, but since parents are first cousins perhaps one of them might do.  JC

________________________________

From: pagid-bounces at list.clinimmsoc.org on behalf of Richard Wasserman
Sent: Sat 8/27/2011 5:40 AM
To: pagid at list.clinimmsoc.org
Subject: Re: [CIS-PAGID] FW: Rx of APECED


You don't mention how many organs are involved. I had transplanted a teenage girl with hypothyroidism, hypoparathyroidism, Addison's and ovarian abnormalities but no diabetes. She has done well following HSCT from a matched male sib. 
Richard Wasserman


On Thu, Aug 25, 2011 at 9:02 AM, Church, Joseph <JChurch at chla.usc.edu> wrote:


	Colleagues:

	
	I follow a teen with APECED.  Endocrinology is managing his endocrinopathies with replacement therapy.
	 
	Although his HgbA1c is normal, he has developed 3 diabetes-related auto-antibodies.
	 
	Do you have any direct experience with the use of immunosuppressants or rituximab to slow or stop the progression of this process?
	 
	Joe Church 

	Children's Hospital Los Angeles

	
	
	

	
	
	 
	
	
	

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Richard L. Wasserman, MD, PhD
DallasAllergyImmunology
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