[CIS-PAGID] FW: Rx of APECED

Richard Wasserman drrichwasserman at gmail.com
Sat Aug 27 08:40:29 EDT 2011


You don't mention how many organs are involved. I had transplanted a teenage
girl with hypothyroidism, hypoparathyroidism, Addison's and ovarian
abnormalities but no diabetes. She has done well following HSCT from a
matched male sib.
Richard Wasserman

On Thu, Aug 25, 2011 at 9:02 AM, Church, Joseph <JChurch at chla.usc.edu>wrote:


> Colleagues:****

>

>

> I follow a teen with APECED. Endocrinology is managing his

> endocrinopathies with replacement therapy.

>

> Although his HgbA1c is normal, he has developed 3 diabetes-related

> auto-antibodies.

>

> Do you have any direct experience with the use of immunosuppressants or

> rituximab to slow or stop the progression of this process?

>

> Joe Church ****

>

> Children’s Hospital Los Angeles****

>

>

>

> ****

>

>

>

>

>

>

> ****

>

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--
Richard L. Wasserman, MD, PhD
DallasAllergyImmunology
7777 Forest Lane, Suite B-332
Dallas, Texas 75230
Office (972) 566-7788
Fax (972) 566-8837
Cell (214) 697-7211
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