[CIS PIDD] Adult with CVID + Lipomas
Bodo Grimbacher
bodo.grimbacher at uniklinik-freiburg.de
Tue Sep 11 18:01:12 EDT 2012
Dear Joe, dear all,
among >1900 CVID patients in the ESID registry there are 3 (all adult)
CVID patients with SCIG, who have some form of lipomas:
one with a haemangiomyolipoma,
and two with lipomatosis,
However, a causal relation with the treatment is not recorded or reported.
Best, Bodo
****************************************
Univ.-Prof. Dr. med. B. Grimbacher
Scientific-Director
CCI - Centre of Chronic Immunodeficiency
UNIVERSITÄTSKLINIKUM FREIBURG
Tel.: 0761 270-77731 Fax: -77744
Engesserstraße 4, 79108 Freiburg
bodo.grimbacher at uniklinik-freiburg.de
www.uniklinik-freiburg.de/cci
and
Consultant Immunologist
Department of Immunology
Royal Free Hospital
UNIVERSITY COLLEGE LONDON
Pond Street
London NW3 2QG
b.grimbacher at ucl.ac.uk
www.centreforimmunodeficiency.com
Am 30.08.12 00:33 schrieb "Church, Joseph" unter <JChurch at chla.usc.edu>:
>
>Thank you, Bodo. I would much appreciate your querying the ESID
>database. JC
>
>-----Original Message-----
>From: pagid-bounces at list.clinimmsoc.org
>[mailto:pagid-bounces at list.clinimmsoc.org] On Behalf Of Bodo Grimbacher
>Sent: Wednesday, August 29, 2012 2:44 PM
>To: pagid at list.clinimmsoc.org
>Subject: Re: [CIS PIDD] Adult with CVID + Lipomas
>
>
>Hi Joe,
>No, not seen in >180 patients (about 60 in SCIG) in London nor in >280
>pat. in Freiburg (>140 on SCIG).
>What product? Shall I query the ESID database (>1400 CVIDs) ?
>Yours, Bodo
>
>****************************************
>Univ.-Prof. Dr. med. B. Grimbacher
>Scientific Director
>CCI - Centre of Chronic Immunodeficiency UNIVERSITÄTSKLINIKUM FREIBURG
>Tel.: 0761 270-77731 Fax: -77744
>Engesserstraße 4, 79108 Freiburg
>bodo.grimbacher at uniklinik-freiburg.de
>http://www.uniklinik-freiburg.de/cci
>
>
>
>
>
>
>
>
>
>Am 18.08.12 18:17 schrieb "Church, Joseph" unter <JChurch at chla.usc.edu>:
>
>>The CIS-PIDD listserv is supported by:
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>>
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>>
>>Colleagues:
>>
>>I follow a 40+yo man with classic CVID. He is doing very well on SCIG.
>>However, he has multiple pre-existing subcutaneous lipomas
>>(biopsy-documentd), and he believes that he is developing more at the
>>sites of his SCIG infusions.
>>
>>Have you had experience like this?
>>
>>Thanks for your help.
>>
>>Joe Church
>>Children's Hospital Los Angeles
>>
>>
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