[CIS PIDD] Adult with CVID + Lipomas

[Church, Joseph]

Thank you, Bodo.  JC

-----Original Message-----
From: pagid-bounces at list.clinimmsoc.org [mailto:pagid-bounces at list.clinimmsoc.org] On Behalf Of Bodo Grimbacher
Sent: Tuesday, September 11, 2012 3:01 PM
To: pagid at list.clinimmsoc.org
Cc: Gerhard Kindle
Subject: Re: [CIS PIDD] Adult with CVID + Lipomas


Dear Joe, dear all,

among >1900 CVID patients in the ESID registry there are  3 (all adult) CVID patients with SCIG, who have some form of lipomas:

one with a haemangiomyolipoma,
and two with lipomatosis,

However, a causal relation with the treatment is not recorded or reported.

Best, Bodo



****************************************
Univ.-Prof. Dr. med. B. Grimbacher

Scientific-Director
CCI - Centre of Chronic Immunodeficiency UNIVERSITÄTSKLINIKUM FREIBURG
Tel.: 0761 270-77731  Fax: -77744
Engesserstraße 4, 79108 Freiburg
bodo.grimbacher at uniklinik-freiburg.de
www.uniklinik-freiburg.de/cci

and 

Consultant Immunologist
Department of Immunology
Royal Free Hospital
UNIVERSITY COLLEGE LONDON
Pond Street
London NW3 2QG
b.grimbacher at ucl.ac.uk
www.centreforimmunodeficiency.com















Am 30.08.12 00:33 schrieb "Church, Joseph" unter <JChurch at chla.usc.edu>:


>

>Thank you, Bodo.  I would much appreciate your querying the ESID 

>database.  JC

>

>-----Original Message-----

>From: pagid-bounces at list.clinimmsoc.org 

>[mailto:pagid-bounces at list.clinimmsoc.org] On Behalf Of Bodo Grimbacher

>Sent: Wednesday, August 29, 2012 2:44 PM

>To: pagid at list.clinimmsoc.org

>Subject: Re: [CIS PIDD] Adult with CVID + Lipomas

>

>

>Hi Joe,

>No, not seen in >180 patients (about 60 in SCIG) in London nor in >280 

>pat. in Freiburg (>140 on SCIG).

>What product? Shall I query the ESID database (>1400 CVIDs) ?

>Yours, Bodo

>

>****************************************

>Univ.-Prof. Dr. med. B. Grimbacher

>Scientific Director

>CCI - Centre of Chronic Immunodeficiency UNIVERSITÄTSKLINIKUM FREIBURG

>Tel.: 0761 270-77731  Fax: -77744

>Engesserstraße 4, 79108 Freiburg

>bodo.grimbacher at uniklinik-freiburg.de

>http://www.uniklinik-freiburg.de/cci

>

>

>

>

>

>

>

>

>

>Am 18.08.12 18:17 schrieb "Church, Joseph" unter <JChurch at chla.usc.edu>:

>

>>The CIS-PIDD listserv is supported by:

>>Clinical Immunology Society - The science & practice of human 

>>immunology

>>

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>>E: info at clinimmsoc.org

>>

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>>

>>

>>Colleagues:

>> 

>>I follow a 40+yo man with classic CVID.  He is doing very well on SCIG.

>>However, he has multiple pre-existing subcutaneous lipomas 

>>(biopsy-documentd), and he believes that  he is developing more at the 

>>sites of his SCIG infusions.

>> 

>>Have you had experience like this?

>> 

>>Thanks for your help.

>> 

>>Joe Church

>>Children's Hospital Los Angeles

>>

>>

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>Clinical Immunology Society - The science & practice of human 

>immunology

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