[CIS PIDD] [cis-pidd] CVID, NRH and HSCT?

[Sokolic, Robert (NIH/NHGRI) [E]]

I have previously spoken to Dr. Filipovich at Cincinnatti Children's MC about doing a combined kidney-marrow transplant. I believe that she has some experience with liver-marrow as well.
-Rob Sokolic

From: Hélène Decaluwe <helene.decaluwe at umontreal.ca<mailto:helene.decaluwe at umontreal.ca>>
Reply-To: CIS-PIDD <cis-pidd at lists.clinimmsoc.org<mailto:cis-pidd at lists.clinimmsoc.org>>
Date: Friday, May 10, 2013 5:31 PM
To: CIS-PIDD <cis-pidd at lists.clinimmsoc.org<mailto:cis-pidd at lists.clinimmsoc.org>>
Subject: Re: [cis-pidd] CVID, NRH and HSCT?


Hello,

Just a thought... If you decide to go ahead with a BMT, it might be interesting to evaluate if the same donor could give both the liver and the HSCT. It would theoretically allow your patient to become fully tolerant to the liver...

Hélène


Dr Hélène Decaluwe, MD, PhD, FRCPC
Service d'immunologie et rhumatologie pédiatrique
Centre de recherche du CHU Sainte-Justine
3175, chemin de la Côte Sainte-Catherine
H3T 1C5, Montréal (Québec), Canada
Tél bureau: (514) 345-4713
Tél labo: (514)345-4931, poste 2248
Fax: (514) 345-4897
Email: helene.decaluwe at umontreal.ca<mailto:helene.decaluwe at umontreal.ca>

Le 2013-05-10 à 14:02, Zachary D. Jacobs, MD a écrit :

Hello all,

I follow 40 year-old man with CVID, diagnosed about 15 years ago.  For the last several years he has had worsening nodular regenerative hyperplasia associated with his disease, eventually causing portal hypertension, hepatic encephalopathy and TIPS placement.  He is now on the liver transplant list and has actually been given a waiver for this, given his CVID.  Hepatology would like for him to receive a HSCT within 90 days of him receiving his new liver (assuming the transplant happens), to minimize the risk of the pathophysiology repeating itself.

Does anyone have any experience with this?  Would an immunology center in the US like to evaluate him any further for this?

Thanks,

Zach

--
Zachary D. Jacobs, M.D.
The Center for Allergy & Immunology
Saint Luke’s Physician Partners
Medical Plaza II
4330 Wornall, Suite 40
Kansas City, MO 64111

Ph: 816.531.0930
Fax: 816.753.2671

CONFIDENTIALITY NOTICE. This e-mail and attachments (if any) may contain information that is confidential, proprietary, privileged or otherwise prohibited by law from disclosure or re-disclosure. This information is intended solely for the individual(s) or entity(ies) to whom this e-mail or attachments are addressed. If you have received this e-mail in error, you are prohibited from using, copying, saving or disclosing this information to anyone else. Please destroy the message and any attachments immediately and notify the sender by return e-mail. Thank you.

PPlease consider the environment before printing this message.


---

The CIS-PIDD listserv is supported by:

[http://www.clinimmsoc.org/UserFiles/image/cis-pidd-list-logo_v1.jpg]
The science & practice of human immunology

P: +1.414.224.8095
E: info at clinimmsoc.org<mailto:info at clinimmsoc.org>

Not a member of CIS? Please visit www.clinimmsoc.org<https://cis.execinc.com/edibo/Signup> to join!

You are currently subscribed to cis-pidd as: helene.decaluwe at umontreal.ca<mailto:helene.decaluwe at umontreal.ca>.
To unsubscribe click here: http://lm.clinimmsoc.org/u?id=195974481.344c60ad8f02bd5339f26ede4e2e01ab&n=T&l=cis-pidd&o=43330168



---

The CIS-PIDD listserv is supported by:

[http://www.clinimmsoc.org/UserFiles/image/cis-pidd-list-logo_v1.jpg]
The science & practice of human immunology

P: +1.414.224.8095
E: info at clinimmsoc.org<mailto:info at clinimmsoc.org>

Not a member of CIS? Please visit www.clinimmsoc.org<https://cis.execinc.com/edibo/Signup> to join!

You are currently subscribed to cis-pidd as: sokolicr at mail.nih.gov<mailto:sokolicr at mail.nih.gov>.
To unsubscribe click here: http://lm.clinimmsoc.org/u?id=183824760.3ff55aacd8c930275f65c3a15acc4c67&n=T&l=cis-pidd&o=43331157

---
The CIS-PIDD listserv is supported by the Clinical Immunology Society
The science & practice of human immunology

P: +1.414.224.8095
E: info at clinimmsoc.org

Not a member of CIS? Please visit www.clinimmsoc.org to join!

You are currently subscribed to cis-pidd as: pagid at list.clinimmsoc.org.
To unsubscribe click here: http://lm.clinimmsoc.org/u?id=183939985.3ea13d40a15475ac00ebbd9cd8a37d6d&n=T&l=cis-pidd&o=43331172
or send a blank email to leave-43331172-183939985.3ea13d40a15475ac00ebbd9cd8a37d6d at lists.clinimmsoc.org