[CIS PIDD] [cis-pidd] CVID, NRH and HSCT?

[Michelle Yasharpour, MD]

Hi Dr. Riedl,

I was just wondering if you had seen Michelle Bui and what your thoughts
were.

Thanks,
Michelle Yasharpour



On Fri, May 10, 2013 at 11:42 AM, Riedl, Marc <MRiedl at mednet.ucla.edu>wrote:


> We have presented a couple of severely affected CVID patients to our

> Heme-Onc HSCT Committee here over the last several years and to date they

> have been unwilling to move forward due to a lack of published literature

> and established protocols.  I wonder if anyone from the NIH could comment

> as I had one patient that was "evaluated" there but reportedly not

> transplanted in part due to lack of a suitable donor.

>

> Best,

>

> Marc

>

> Marc Riedl, M.D., M.S.

> Associate Professor of Medicine

> Section Head, Clinical Immunology and Allergy

> UCLA - David Geffen School of Medicine

> 10833 Le Conte Ave, 37-131 CHS

> Los Angeles, CA  90095-1680

> Tel 310.206.4345  Fax 310.267.0090

>

>

> From: "<Zachary D. Jacobs>", MD <zjacobs.md at gmail.com<mailto:

> zjacobs.md at gmail.com>>

> Reply-To: CIS-PIDD <cis-pidd at lists.clinimmsoc.org<mailto:

> cis-pidd at lists.clinimmsoc.org>>

> Date: Friday, May 10, 2013 11:02 AM

> To: CIS-PIDD <cis-pidd at lists.clinimmsoc.org<mailto:

> cis-pidd at lists.clinimmsoc.org>>

> Subject: [cis-pidd] CVID, NRH and HSCT?

>

> Hello all,

>

> I follow 40 year-old man with CVID, diagnosed about 15 years ago.  For the

> last several years he has had worsening nodular regenerative hyperplasia

> associated with his disease, eventually causing portal hypertension,

> hepatic encephalopathy and TIPS placement.  He is now on the liver

> transplant list and has actually been given a waiver for this, given his

> CVID.  Hepatology would like for him to receive a HSCT within 90 days of

> him receiving his new liver (assuming the transplant happens), to minimize

> the risk of the pathophysiology repeating itself.

>

> Does anyone have any experience with this?  Would an immunology center in

> the US like to evaluate him any further for this?

>

> Thanks,

>

> Zach

>

> --

> Zachary D. Jacobs, M.D.

>

> The Center for Allergy & Immunology

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> Saint Luke’s Physician Partners

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