[CIS PIDD] [cis-pidd] Liver Transplant in patient with Common Variable Immunodeficiency

[Perez, Elena]

I just inherited a very similar female 36yo
 pt with cvid and she is listed for liver transplant.
She has had complications including brain abscess (recovered) presumably from a shunt mechanism. Other specialists involved in her care believe that liver transplant is the only hope. I'm happy to compare notes -- e.perez13 at med.miami.edu<mailto:e.perez13 at med.miami.edu>. Despite oxygen dependence she is extremely active and was working until recently.

Elena

Sent from my iPhone

On Sep 27, 2013, at 8:08 AM, "Sullivan, John  (Office of Research)" <John.Sullivan at umassmed.edu<mailto:John.Sullivan at umassmed.edu>> wrote:

Colleagues, I have a 42 yo male with CVID that I diagnosed 30 years ago. He developed hepatopulmonary syndrome secondary to granulomatous hepatitis. Otherwise he has done very well. He is oxygen dependent and the pulmonologists say that a liver transplant will fix his lungs but the transplant people are reluctant because of his CVID. I say do transplant as he has done very well escaping serious infections with his IVIG. I would appreciate hearing your experiences with liver transplantation in patients with CVID.  John.


John L. Sullivan, M.D.
Program in Molecular Medicine
University of Massachusetts Medical School
373 Plantation St, Suite 210
Worcester, MA 01605
508-856-1638
John.sullivan at umassmed.edu<mailto:John.sullivan at umassmed.edu>


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