[CIS PIDD] [cis-pidd] ADA lung disease

[Sullivan, Kathleen]

Rob Sokolic had a nice presentation on the intrinsic lung disease in ADA SCID at CIS.  We have a patent who is clearly pathogen-free but for whom the lung disease has been a major factor in her care.  In thinking about a tracheostomy post-transplant, it would be helpful to know how long this takes to resolve post-transplant.

Does anyone have experience with the quite severe ADA SCIDs and the anticipated time of resolution of their lung disease post-engraftment?  I would be eager to hear it.

Thanks.

Kate
Kate Sullivan, MD PhD
Wallace Chair of Pediatrics
Professor of Pediatrics
ARC 1216 Immunology CHOP
3615 Civic Center Blvd.
Philadelphia, PA 19104
(p) 215-590-1697
(f) 267-426-0363



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