[CIS PIDD] [cis-pidd] IGSC for autoimmune disorders

[CIS-PIDD]

Thank you All for the very useful information.  I greatly appreciate your taking the time.   Joe Church

From: CIS-PIDD [mailto:cis-pidd at lists.clinimmsoc.org]
Sent: Thursday, June 16, 2016 1:45 AM
To: CIS-PIDD
Subject: Re: [cis-pidd] IGSC for autoimmune disorders

Joe,
As noted, I have heard of a number of cases of high dose IGSC for immunomodulation. You also use enzyme facilitated IGSC. Isabella Quinti has a couple of cases, I think of ITP, in which she has used that approach. You could give it every two weeks if you choose.
Richard Wasserman
Dallas

On Thu, Jun 16, 2016 at 3:08 AM, CIS-PIDD <cis-pidd at lists.clinimmsoc.org<mailto:cis-pidd at lists.clinimmsoc.org>> wrote:
Hi Joe!

The Oxford group, especially Siraj, may have one of the broadest experiences of immunomodulatory SCIG?

http://www.ncbi.nlm.nih.gov/m/pubmed/?term=misbah+s+AND+subcutaneous+immunoglobulin+AND+

It is used in neuropathies - especially in MMN - increasingly, and there is now a growing body of literature:

http://www.ncbi.nlm.nih.gov/m/pubmed/27134672/?i=1&from=neuropathy%20AND%20subcutaneous%20immunoglobulin

Hope this helps. It clearly works for most MMNs, thus if insurance issues, such literature helps at least in neuropathies when dealing with insurance companies?

ATB

Mikko
Oyl Mikko Seppänen
Harvinaissairauksien yksikkö (HAKE)

Head, Rare Disease Center,
Helsinki University Hospital (HUH)
FINLAND

phone +358 947180201<tel:%2B358%20947180201>
GSM +358 50 4279606<tel:%2B358%2050%204279606>
fax +358 9 47174703<tel:%2B358%209%2047174703>

CIS-PIDD <cis-pidd at lists.clinimmsoc.org<mailto:cis-pidd at lists.clinimmsoc.org>> kirjoitti 16.6.2016 kello 0.50:
Colleagues:

Has anyone used the subcutaneous route to administer ‘high dose’ immunoglobulin (2g/kg) to patients with autoimmune disease?

Joe Church
Children’s Hospital Los Angeles

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Richard L. Wasserman, MD, PhD
Allergy Partners of North Texas
7777 Forest Lane, Suite B-332
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