[CIS PIDD] [cis-pidd] IL7R SCID family in El Salvador

[CIS-PIDD]

Greetings everyone,

I have a lovely family with history of IL7R SCID who live in El Salvador (we diagnosed one of the daughters during a visit to the US several years ago).   They are pregnant again, due in September.  They have family in the DC region, and I am tempted to just suggest that they visit and fortuitously happen to be here when baby is due.... but I'm worried with the current political climate, they will have issues getting in when she is in the third trimester.

As a backup, does anyone have contacts in El Salvador who have experience with SCID dx and treatment?   This family is reasonably well off and could travel regionally as well.

Thanks so much,
Mike


Michael D. Keller, MD

Assistant Professor, Division of Allergy / Immunology

Center for Cancer and Immunology Research

Jeffrey Modell Diagnostic and Research Center for

Primary Immunodeficiency Disorders

Children's National Health System

111 Michigan Ave NW, M7745A

Washington, DC 20010

Clinic: 202.476.2140

Office: 202.476.5843

Fax: 202.476.2280

www.ChildrensNational.org

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