[CIS PIDD] [cis-pidd] IL7R SCID family in El Salvador

[CIS-PIDD]

I believe the best way to get a fast diagnosis and transplant is in USA. We can diagnose the child in Mexico City, but our cord blood and bone marrow registries are small and many times we spend months until we find a good matching donor. 
There some well trained pediatric immunologist in El Salvador, but I am afraid that infrastructure and availability of HSCT is not granted.
Héctor Eduardo Guidos Morales <heguidos at hotmail.com> is a pediatric immunologist who was trained with us in Mexico City and works at the biggest pediatric hospital in San Salvador.
Francisco J. Espinosa-Rosales, M.D.Jeffrey Modell Diagnostic CenterInstituto Nacional de PediatríaMexico City, MEXICO
Centro de Inmunología, Alergia y PediatríaHospital Ángeles LomasHuixquilucan, Estado de MéxicoTel:  +52 (55) 52474097 y +52 (55) 52474098francisco.espinosa at iap.mx


      De: CIS-PIDD <cis-pidd at lists.clinimmsoc.org>
 Para: CIS-PIDD <cis-pidd at lyris.dundee.net> 
 Enviado: Lunes, 10 de abril, 2017 10:12:09
 Asunto: [cis-pidd] IL7R SCID family in El Salvador
  
 Greetings everyone,
I have a lovely family with history of IL7R SCID who live in El Salvador (we diagnosed one of the daughters during a visit to the US several years ago).   They are pregnant again, due in September.  They have family in the DC region, and I am tempted to just suggest that they visit and fortuitously happen to be here when baby is due.... but I'm worried with the current political climate, they will have issues getting in when she is in the third trimester.  
As a backup, does anyone have contacts in El Salvador who have experience with SCID dx and treatment?   This family is reasonably well off and could travel regionally as well.  
Thanks so much,Mike 
Michael D. Keller, MDAssistant Professor, Division of Allergy / ImmunologyCenter for Cancer and Immunology ResearchJeffrey Modell Diagnostic and Research Center for Primary Immunodeficiency DisordersChildren's National Health System111 Michigan Ave NW, M7745AWashington, DC 20010Clinic: 202.476.2140
Office: 202.476.5843Fax: 202.476.2280www.ChildrensNational.org
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